Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Part 6)

It started simply enough with some notes. Like most writers, I carry a little notebook around me. It makes me feel just-pretentious-enough; a way to take notes on paper, which I can't quite give up despite how much damn easier it is to take notes on an iPhone. But for me, iPhones are for grocery … Continue reading Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Part 6)

Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Meanwhile, Part 5.5)

Just to round up the story, in the middle of the acid reducers, and the allergy tests, and the EOE diagnosis, I had surgery to remove that "incidentaloma" they found on my uterus back when they did that barrage of tests in September 2014. It was a polyp, and there was a 1/1000 chance that … Continue reading Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Meanwhile, Part 5.5)

Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Part 5)

So I had no idea when I started this blog it was going to get so weird. And so science-y. And so... personal. For the first time today, I am hesitating before typing. Somehow, sharing the details of this bizarre diagnosis seems more personal than sharing the details of my colonoscopy prep. And yet... I know there's a … Continue reading Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Part 5)

Would You Like An Autoimmune Disorder with your Autoimmune Disorder? (Part 4)

Part 1 Part 2 Part 3 The few people who I told I was going to have a colonoscopy/endoscopy all said the same thing: "The prep is the worst." Turns out, they are 100% correct. Indeed, my friends, the prep is DEFINITELY the worst. In order for a doctor to most effectively stick a camera … Continue reading Would You Like An Autoimmune Disorder with your Autoimmune Disorder? (Part 4)

Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Part 3)

Previously on my screwed up medical life: Some crazy blood test results and intense stomach cramps landed me back at the doctor in August 2014 She ran a bunch of tests Those tests revealed nothing ...And that was about it. There's a pretty defined limit to what a PCP can do in our current medical … Continue reading Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Part 3)

Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Part 2)

When your blood sugar is 500, it is because you have diabetes. And because you have diabetes, you need insulin. It's a terrible thing, but to its credit, it's a fairly straightforward thing. However, when your eosinophils are 45%, the diagnosis and the procedure is much less cut-and-dry. I will confess that, before this experience, I had … Continue reading Would You Like An Autoimmune Disorder With Your Autoimmune Disorder? (Part 2)

Would You Like An Autoimmune Disorder with Your Autoimmune Disorder? (Part 1)

I've been avoiding it for some time, but I think I just gotta dive in. I'll warn you: unlike the first stretch of my narrative, this one's a lot less satisfying. For one, it's ongoing, and I'll warn you right now: as of today, December 12, 2014, the "end" of this story has not really come yet. … Continue reading Would You Like An Autoimmune Disorder with Your Autoimmune Disorder? (Part 1)

Living With Diabetes: The Clinical Trial (Part 3)

My senses were on full alert in the two weeks after my first infusion. I was hyper-attuned to my body, noticing every sniffle, every yawn, every ache and pain.  If I sneezed, I immediately started thinking "side effect". If my stomach hurt, I began composing an email to the team at the Diabetes Center about … Continue reading Living With Diabetes: The Clinical Trial (Part 3)

Living With Diabetes: The Clinical Trial (Part 2)

The amount of paperwork that goes into signing consent for a clinical trial is staggering, and quite frankly, enough to make even the most confident participant start to feel a little anxious. You're literally writing your name to a multi-page document that says you acknowledge whatever the heck could happen to you, and heck yes, you're OK … Continue reading Living With Diabetes: The Clinical Trial (Part 2)

Living With Diabetes: The Clinical Trial (Part 1)

Control. It's a big theme of this blog, much as it's been a big theme of my life this past year. The diabetes diagnosis wrenched control away from me and threatened never to give it back. Especially those first few months, I felt completely at the mercy of my disease. I thought about it constantly. I … Continue reading Living With Diabetes: The Clinical Trial (Part 1)